genetics, genes, ethics, genetic testing, records, right of privacy, disease, family 

"A book that is at once scholarly, comprehensive, and accessible, Dr. Klitzman brings his wisdom to the major issues that confront sufferers from disorders with a strong genetic underpinning. Klitzman and the men and women he interviews address the predicaments and moral dilemmas facing patients and families in an age of personalized medicine: whether to test, whom to tell, and how to integrate awareness of disease into the sese of self."--Provided by publisher 

x, 365 p.; 25 cm 

Includes appendices, bibliographical references, and index.

Part 1 Introduction -- Embarking on Genetic Journeys: Introduction -- Part 2 Genes in the Family -- "Do I Want to Know?": Testing Decisions -- "Whom Should I Tell?" : Disclosures and Testing in Families -- Part 3 Genes in the Mind: Understanding Genetics -- Genetic Tests as Rorschachs: Questions of "Why Me?" -- "Am I My Genes?": Genetic Identities -- "Lightening Doesn't Strike Twice" : Myths and Misunderstandings about Genetics -- Part 4 Genes in the Clinic -- "What Should I Do About My Genes?": Deciding on Treatment -- "Passing It On?": Reproductive Choices -- "There's Only Privacy If You Make It": Problems with Privacy and Insurance-- Part 5 Genes in the Wider World -- "Keep it in the Family?": Other Disclosures Beyond Kin -- "Crossing Over:": Entering Genetic Communities -- "Testing Everyone?": Gene Politics -- Part 6 Conclusions-- Genes in Everyday Life -- Notes -- Appendix A Genetic Testing -- Appendix B Sample Questions from Semi-Structured Interviews -- Appendix C Additional Details Concerning Methods -- Index